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We're Margaret Motamed and Jill Rege, two moms of special needs kids, and we're looking for a little help.

When we started down this bio-med/special diets road to help our boys—both affected by ASD—we needed a roadmap. Like you, we've pieced together new ways to feed our sons, to think about how we feed them, to hook up with the right professional help, and to move forward. Margaret decided what she really needed was a book of tips— the little nuggets that make life easier. And in some cases make this special diet and biomedical treatment road doable.

Jill offered to help and now we're actively putting together a book of how-tos from everyone who has a tip to offer. This book will be a fundraiser for our sons' school, Hope Technology School (www.hopetechschool.org), with all author proceeds going to the school.

We NEED YOUR HELP! Please consider sharing with us your favorite tips… What have you found to be helpful? What have you discovered works for you, your child, your family? How do you sneak broccoli in? What do you pack for lunch?

The first section we're working on is on special diets (We've included the proposed table of contents below).

Please send your tips to     and tell us whether we can include your tip anonomously or with attribution. If you are willing to be interviewed either by phone or email, please let us know that, too. Please feel free to forward this note to other lists or to friends who might be able to help.

Thank you for your help and valuable insight.


Margaret Motamed and Jill Rege

PS: Below is the draft table of contents:



Parent friendly tips for kids on special diets

(All author proceeds for the book to be given to Hope Technology
School)

Welcome to our resource book of ideas and tips for parents of kids on special diets. We compiled this book of tips to share many tips from our varied perspectives, hoping to inspire and help parents with the challenges of special diets and special environmental needs.

In writing this book we speak to you as parents of special needs kids. We are not doctors, nutritionists, or other experts in this area! We hope that you will find this to be a parent friendly book full of great tips and ideas. And we are very thankful to the many parents and experts who contributed their ideas to the book! And most of all, we dedicate this book to the children, staff, and parents of Hope Technology School.

(Goal: a parent friendly, companion book to Dr JM's CSB)

What are the special diets we have experience with? 5 GFCF Feingold SCD GFCF and SCD, together Additional eliminations (Soy, Egg, Sugar, etc) 6 Body Ecology 7 Feast without yeast 7 Getting started 7 What is a Leaky gut What is an allergy Inspiration for staying on the special diet 13 Tips for working with Doctors, Nutritionists, and other professionals
13
Tips for saving money, ie the Cheaper route 16 Pain behavior = hidden behavioral causes 16 Everyday diet challenges 16 How strict are we with the diet? 16 What do do if there is an infraction, a food accident 17 Teaching your child to understand which foods they can and cannot eat
18
Nutrition
Getting him to try new foods / and picky eaters 18 Picky eaters 19 Improving nutrition 19 Encouraging kids to drink water 19 Oils Food Additives Mold and Yeast Balancing nutrition, aka sneaking in nutrition Support Your health and spirit Support groups Social occasions It's a birthday party, now what? 20 Eating out 22 Traveling 22 Playdates and visits to the park 28 Older kids and special diets 28 At the Grocery Store Shopping Lists In the kitchen 34 Kitchen gadgets and other timesavers 34 Everyday What does a day look like? 35 Does the whole family need to follow the diet? 35 Dear Diary 36 Putting on your detective hat 37 Blood sugar 38 At School 39 Illness and emergencies 42 Stocking a natural medicine cabinet for the entire family 43 Supplements 47 Giving supplements 48 Premixing supplements 49 Timing of supplements 49 Supplements are not just oral 49 Supplements explained 50 Environment 57 Toys (We need a playdough recipe!!) 57 Toothpaste 57 Cosmetics 58 Playgrounds 58 School and therapy 58 Mold 58 Chlorine and tap water. 59 Water in general. 59 Heat sources 60 Swimming 60 Clothing 60 Light sources 60 Household cleaning and maintenance 61 Mercury and other toxins 64 Plastics 64 Upolstery and mattresses 65 Aluminum Pesticides 65 Favorite recipes and products 67 References and resources 77
 

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Copyright 2006, I am just a mom, not a doctor, this is not medical advice...Last updated: 03/15/07.